Resolve any questions you may have
Pediatric palliative care is a longer-term care process, often lasting years. It is important to keep in mind that children are constantly developing physically, psychologically, and emotionally.
In Spain, there are 60,000 families. Only 15% are served. In Madrid, approximately 3,500, of which approximately 30% are served.
No. The professionals at Fundación porqueViven coordinate with the Pediatric Palliative Care team at the Niño Jesús Hospital to optimize the use of their resources and care for families.
No. Any patient receiving Pediatric Palliative Care can be seen by the Fundación porViven. Families who have unexpectedly lost a child and want support with their grief sometimes come to the Foundation. We always assess their needs to assist them or direct them to a more appropriate resource.
We don’t know if they are insufficient but the needs of families are endless. Excellent care is provided in Madrid by a team that can respond 24/7. What Fundación porqueViven provides are additional services that are not included in the usual service portfolio of a public Pediatric Palliative Care unit.
It is the first comprehensive pediatric palliative care center in Spain. It was created in Madrid because the public health system here guarantees care for children with palliative needs and their families. The CAPPI will complement this care with additional resources for respite and socialization. It will become the first intermediate resource between conventional acute care hospital admissions and home hospitalization.
Rooms for children to receive respite from caregivers, a Day Center, an Integration Classroom, a Therapy Area, a Training Center for professionals, and end-of-life apartments.
The CAPPI will begin operating in Madrid in mid-2026, complementing public health from then on to offer comprehensive care services in Pediatric Palliative Care.
These are periods of respite offered to families caring for children with palliative care needs. These respites provide primary caregivers with the opportunity to rest, take care of their own well-being, and recharge, while ensuring the child continues to receive quality care. Family respites may include temporary stays in the hospital or skilled nursing facilities, home care services, or recreational and therapeutic activities.
Respite programs offer families an opportunity to reduce stress and emotional fatigue. They help caregivers avoid emotional breakdown, allowing them to maintain their well-being and continue providing quality care to their children over the long term, ensuring a better balance in their daily lives.
At PorqueViven, we work to improve the lives of children who cannot be cured and those of their families.
But we can’t do it alone. Your help is key to ensuring that more children with incurable diseases receive the care they deserve. Donate, share, or get involved and be part of the change.
Together, we can fill their lives with life.
Stay connected. Stay inspired.
