Improve care for children and adolescents in need of palliative care and provide comprehensive support to their families.
That all children and adolescents in palliative care receive the best possible care, adapted to their needs, from family, professionals and society.
In the Fundación porqueViven, believe that the true value of our work lies in the people who make it possible. We have a team of committed, passionate professionals, specialised in different areas, who work together with a single purpose: to provide comprehensive support and continuous accompaniment. Meet the people behind our mission and how every day they contribute to making a difference.
I am José Carlos, a doctor dedicated to development cooperation for twenty-six years and since 2017 director of the Foundation and of the Psychosocial Care Team in the Comprehensive Care Programme for People with Advanced Illnesses.
‘Palliative care has not lengthened our son’s life, but rather extended it’.
(María Montoya)
I am responsible for the Casa PorqueViven Project. Previously, I have been CEO of Design for Change Global Inc. and, previously, coordinator of Design for Change Spain. I have also worked as provincial director of Volunteering and Training, assistant to the provincial president and provincial director of Fundraising and Legal and Patrimonial Affairs of the Spanish Red Cross in León, and as provincial secretary of the Spanish Red Cross in Cádiz.
‘When you kiss your child, remember that he is a mortal’.
(Epictetus)
I’m Jara, I’ve been working with the PorqueViven Foundation since October 2018. My task is to ensure that all the professionals of the foundation have everything they need to take care of the families as well as possible.
‘We work for children, because children are the ones who know how to love, because children are the hope of the world’.
(José Martí)
I am Ana, a social health worker specialising in palliative care. Since 2016 I have been part of the Psychosocial Care Team of the Comprehensive Care Programme for People with Advanced Illnesses of la Caixa and I am responsible for the area of family care and volunteering at the Foundation.
‘If we cannot give days to life, let us give life to days’.
(Claude Bernard)
I am Cristina, a general health psychologist specialising in Palliative Care and Psychoneurology. I have been working with the PorqueViven Foundation since March 2022, as part of the Psychosocial Care Team in the Comprehensive Care Programme for People with Advanced Illnesses.
‘Sharing is living’
I am Aurora, a general health psychologist specialising in Palliative Care, Psycho-oncology and Bereavement Care. I have been working with the PorqueViven Foundation since January 2015, as part of the Psychosocial Care Team in the Comprehensive Care Programme for People with Advanced Illnesses.
‘First it’s presence, then listening, then therapeutic tools’.
(Eugene Gendlin)
I am Raquel, a health psychologist specialised in paediatric palliative care and bereavement care. I have been part of the Foundation’s team since 2023 and, since 2025, I have been a delegate in Aragon, where I coordinate the Foundation’s work in the region. My work focuses on accompanying children and their families by offering the necessary support to face the challenges that a serious and incurable illness entails, supporting them at every stage of the process. Pproviding a safe space where they can express their emotions, concerns and wishes. Helpping them, with honesty and as a basis of trust, to find strength in their vulnerability, promoting acceptance and wellbeing.
‘Hope and patience are two infallible remedies, the surest and gentlest remedies to rest in the face of adversity’.
(Burton)
I am Nieves, music therapist and social educator. I started in the music therapy project of PorqueViven in March 2022.
‘Working with vocation towards people, their needs and music is my passion’.
I am Alcora, paediatric physiotherapist and expert in respiratory physiotherapy and paediatric palliative care. I have been part of the Hospice at home team since 2009.
‘You matter because you are you, you matter until the last moment of your life and we will do everything in our power, not only to help you die in peace, but also to help you live until the day you die’.
(Cicely Saunders)
I am Alex, a social health worker at the Unidad de Atención Integral Paliativa Pediátrica de la Comundad de Madrid. Since 2009 I have been linked to Porque Viven, doing my bit to respond to the social needs that arise around a seriously ill son or daughter. I am currently part of the Psychosocial Care Team’s on-call team in the Programme of Comprehensive Care for People with Advanced Illnesses.
‘Caring for life is an art to the end’.
I am Dominique Gross, social consultant and spiritual companion. When life seems to be closing down, when hope fades, when the future becomes improbable and the present wears out, then spirituality and transcendence are resources, experiences and commitments that can transform people’s reality for the better. To accompany this transformation, to contribute to the spiritualities of patients and their families – whatever form they take – as positive and useful resources for them is a wonderful task. I am very grateful to be able to facilitate, together with the rest of the Psychosocial Care Team in the Programme of Comprehensive Care for People with Advanced Illnesses, this accompaniment.
I am Maria, an occupational therapist certified in Sensory Integration CLASI and DIR Floortime with experience in early care for children with disabilities. I am part of the Occupational Therapy at home project.
‘Nadia has promised us a tomorrow, live in the present’.
(Elena Huelva)
My name is Gema and I joined the Foundation’s Administration and Accounting department in 2024. My job is to ensure that all resources are managed with transparency and accountability, allowing our work to reach all children and families in need. With dedication and effort we try to ensure that we can continue to grow in order to offer quality care to more and more people.
‘The best teamwork is achieved by people working independently with a common goal’.
(James Cash Penney)
I am Candela, a nurse with experience in paediatric palliative care in the unit of the Hospital Infantil Universitario Niño Jesús and I am part of the Respiros a Domicilio project.
‘Helping to live to the end ‘
I am Claudia, a nurse with experience in paediatric palliative care in the unit of the Hospital Infantil Universitario Niño Jesús and I was part of the Respiros a Domicilio project.
‘Helping to live to the end’
I am Cristina, a journalist specialising in corporate communications. My work focuses on informing, sensitising and raising awareness in society about the importance of paediatric palliative care. Through relevant content that inspires action and fosters empathy, my purpose is to reflect our commitment to children and their families, giving visibility to their stories, showing the true essence of paediatric palliative care.
‘Communication is not only what we say, it is also what we listen to’.
(George Bernard Shaw)
I am Leonor, a social worker specialising in the field of paediatric palliative care. I have been part of the Aragon team of the Foundation since 2024, accompanying children and their families from a social perspective, offering comprehensive support, being present every step of the way. I work in the area of leisure, free time and self-care, to create meaningful spaces for children and their families, where they can share moments of connection and wellbeing, which remain unforgettable memories.
‘You can only see well with the heart, what is essential is invisible to the eye’.
(Antoine de Saint-Exupéry en El Principito)
My name is Gema and I joined the Foundation’s Administration and Accounting department in 2024. My job is to ensure that all resources are managed with transparency and accountability, allowing our work to reach all children and families in need. With dedication and effort we try to ensure that we can continue to grow in order to offer quality care to more and more people.
‘The best teamwork is achieved by people working independently with a common goal’.
(James Cash Penney)
Thomas Nuño Mayer – President
Ricardo Martino Alba – Vice president
José Manuel González Sánchez – Sponsor
José Manuel Moreno Villares – Sponsor
Ignacio Velilla Fernández – Secretary
Marta Ugalde Blanco – Sponsor
Marta Castro Pérez-Chirinos – Sponsor
Teresa Gonzalez Barreda – Sponsor
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